WHAT CAUSES THIS CHRONIC ILLNESS

  The latest research indicates that fibromyalgia must be a central nervous CNS) as well as the involuntary (ANS) systems disorder, dysfunctioning the complete brains' systems, and not an autoimmune condition as previously suspected, circa 2010 research. It is NOT merely A SYNDROME, but a CHRONIC ILLNESS, causing the DYSFUNCTION OF THE Autononomic and Central Nervous Systems that, in turn dysfunction the endocrine, (hormonal), Pineal gland- (sleep system), Hypothalamic system, right and left brains' neurotransmission, (including the neurotransmission of serotonin, tryptophan, melatonin in the '2ND BRAIN' called the Enteric Nervous System within the IMMUNE SYSTEM)- and,  depending how many stressors + traumas either/both EMOTIONAL AND PHYSICAL), the person who has the HERDITARILY INHERITED. FAMILIAL AND PRE-DISPOSITION GENETICS, fibromyalgia has to deal with, from birth/childhood/teenagehood/adulthood, will determine the brain-body functionality/dysfuntionality of the fibromyalgia person.  Thus this illness is seen as FUNCTIONAL MEDICINE AND NOT SCIETIFIC, ORGANIC MEDICINE. Thus the medical professions reluctance, by many drs, to even acknowledge this dreadful conditon - medical schools have neglected, until 2012, to deal in any way with functional medicine as a subject. In one study, scientists at the University of Michigan applied pressure with their thumbs of fibromyalgia patients & healthy participants & asked them to tell them when it hurt. The fibromyalgia patients reported pain at much lower levels of pressure - & functional MRIs showed that areas of their brains involved in pain processing were activated at those levels, says Lesley M. Arnold, MD, director of the Women’s Health Research Program at the University of Cincinnati College of Medicine, who specializes in fibromyalgia. Furthermore, EMG brain studies have, since 2005, established with certainty that firstly, the BRAIN (cortex) appearance of a fibromyalgia person is DIFFERENT to ANY OTHER NON-FIBROMYALGIA PERSONS', and, secondly, on EMG studies, THAT THE THYMUS GLAND that sits behind the STERNUM, and feeds information to the brains' SENSORY NERVOUS SYSTEM, is 4CM SMALLER in fibromyalgics ONLY, thus our 5 SENSES are under extreme duress from birth to demise. (Studies done in Canada and USA)(2004). MRI brain studies done at the University of Oregan in the USA 2008, show distinctly that fibromyalgia brains have only 4 OPIODE RECEPTORS, thus explaining why the hypothalamus cannot 'read' OPIATE DRUGS GIVEN TO ALLEVIATE PAIN - for longer than 3 weeks, and why ADDICtIONS TO BOTH OPIATES AND BENZODIAZAPINES (given to assist wsith sleep), become addictive but after 3 months do not assist the pineal gland at all for patients to sleep. It is interesting but of no ASSISTANCE, that fibromyalgia ca now be 'read' on certain other endocrine studies giving CONFIRMATION that one has high C4 and C8 counts. However, from there, non-Intergrative medical drs or those who know nothing about FM still are unable to help any patient holistically, unless specialised in the subject! 2011 hears murmers of 'acceptance by medical aid IF Health Care Councils ould accept these diagnotics as well as below criterea - but none world0wide as yet do. A real indictment on medical control councils!2011 researchers on test trials with groups of FM patients, have found with ASSURITY that the brain dysfunctioning implodes upon the internal systems of the body, dysfunctioning them too, ie the lymphatic system, immune system, enteric nervous system, upper and lower colon, and concur that 'all illness, due to distress, trauma, stressors, disallow the BOWEL to behave normally, and from thence informs all systems and cellular function to 'act as if ill all the time', unless specialised, Integrative, Functional Medicine healthcare takes place for+with the sufferers. (Professor Majib Ali). Stress-filled times eg what others can interpret at 'jpyous' often debilitate the sufferer, with many negative thoughts. CBT/NLP is NB to assist any patient to regain SELF.

 HOW IS FM DIAGNOSED - THE NEW DIAGNOSTIC CRITEREA-MAY 2010

 The only DEFINITIVE TEST, until MAY 2010, was called a   TENDER POINT EXAMINATION,-decided by the American College of Rheumatology in 1979  but now altered to  a WIDESPREAD  PAIN INDEX SCALE. THIS NEW SYMPTOMS SCALE INCLUDES:MYOFASCIAL + TRIGGER POINT PAIN IN 11-21 LARGE MUSCLES  EXPERIENCED IN THE PAST WEEK, UNREFRESHED SLEEP, FATIGUE AND COGNITIVE ISSUES -ie the 3 hallmarks of approx 50 PHYSICAL SYMPTOMS (NOT CAUSATIVES), and for the 1st time ALLOWS FOR COGNITIVE SYSMPTOMS to be addressed within the realm of FM, thus enabling more knowledgable Health Care Consultant/Professionals more 'scope' of diagnostic criterea. The American College of Rheumatology has given its stamp of approval to this new form of testing which now REPLACESs their previous ONLY DIAGNOSTIC APPROVED TENDER POINT TESTING. The new criterea scales allows flexibility of testing as some sub-sets of Fibromyalgia have only 7 or as many as 24 tender points active at one/some  time(s). The new diagotic scale addresses the PRIMARY (FUNCTIONAL MEDICINE CRITEREA) problem, thereafter a full history has to  be taken, looking for both hereditory,  and familial factors, along with identifying stressors and traumas  to both mental state and physiological state of the patient- ie (both emotional and physical) that are called both pre-existing and co-existing factors . The whole condition  is only well-addressed when brain, body, mind and soul are attended to, holistically ie - brain, body, mind and soul/spirit. Lastly, Myofascial Tender Point Muscle Testing is still done for the sake of showing the patient the generalised painful large muscles.

NOVEMBER 2013:

THERE IS A NEW BLOOD TEST THAT IS BEING SCREENED BY FM RESEARCHERS IN AMERICA, THAT MAY FORETEL, FOR MEDICAL SCIENCE DIAGNOSTIC PURPOSES ONLY, IF ONE IS A CARRIER OR AN ACTIVE FIBROMYALGIA PERSON. IT IS AT THIS STAGE MOST NON- CONCLUSIVEM AND THE COST OF THIS TEST IS SO FAR OUT OF MOST PEOPLE'S REACH -IE $750!!!

PERHAPS THOUGH IT GIVES US HOPE THAT THE FUTURE WILL BRING A SIMPLE BLOOD TEST TO CONFIRM FOR THE SAKE OF THE PATIENT WHO WILL NOT HAVE WAIT THE AVERAGE OF 7 YEARS SEEKING AN ANSWER TO 'WHAT IS WRONG WITH ME AS FM IS 'THE INVISIBLE ILLNESS', AND THEN STILL NOT RECEIVE CORRECT SCIENTIFIC , ORGANIC MEDICINE HELP, AS MEDICAL DRS ARE NOT SCHOOLED IN FUCTIONAL/INTEGRATIVE MEDICINE UNLESS THEY CHOOSE TO TAKE A YEAR OF EXTRA STUDY IN ORDER TO UNDERSTAND 'DYSFUNCTIONALITY OF BRAIN AND BODY SYSTEMS'. SO WE HOLD THUMBS/BREATH FOR SOME RESOLUTION. MEANWHILE, FUNCTIONAL MEDICINE PROTOCOL IS THE ONLY MULTI-DISCIPLINED WAY OF ASSISITING SUFFERERS TO UNDERSTAND AND MANAGE THEIR MANY PRE AND CO EXISTING CONDITIONS ATTACHED TO FM AND OTHER FUNCTIONAL MEDICINE ILLNESSES AS WRITTEN BELOW.

 

What Are The Differences Between Chronic Fatigue Syndrome, ME-CFIDS, and Fibromyalgia?

Fibromyalgia (FM) and Chronic Fatigue Syndrome (CFS) share many similarities, and the names are often used interchangeably in the MEDICAL literature. How Fibromyalgia and Chronic Fatigue Syndrome are related is still debated by professionals. There are a few schools of thought: ·       

They are seperated NOW from 2010, either cohesive or into 3 completely separate illnesses that may or may not have anything  to do with each other.

They are  different disorders that share many similar symptoms. CFS sufferers generally become FATIGUED for a period of 6 months, from no physical activity, before being diagnosed in the allopathic medical world. Most CFS ONLY patients have NO WIDESPREAD PAIN or even VERY LITTLE PAIN to complain of. Thus sheer FATIGUE, with emotional and phsiological etiologies must be established, many have many do no not viral infections that are either dormant or latent or current.

May 2011- A Western Australian Research team have identified via MRI sudies, CHEMICAL ABNORMALITIES in the brains of CHRONIC FATIGUE SUFFERERS. 2012 - still no difinitive CAUSATIVE viral research has been established.

March 2009- EMG resonation research in USA found that the WHOLE BRAIN'S SYSTEMS OF PEOPLE WITH FIBROMYALGIA were different visually to all other people with different conditions.

October 2011- Latest pain medicication research show that dosing/overdosing with  OPIATES, NSAIDs, anti-inflammatories, aspirin, OTC drugs is allowing for risk of high BP, non-fatal heart attacks, most unnecessary if patients are directed correctly via lifestyle changing and coaching+ taking correct meds and supplementation. (ref American Journal of Medicine). The LATEST pain drug for FM , FDA approved is called SAVELLA (MILNACIPRAM ACTIVE INGREDIENT) and up to Dec 2011 has USA reports on succes far greater than with LYRICA. (Lyrica should not be used for longer than 3 months as it loses its' efficacy. Medical drs are prescribing this drug in HIGH doses in error. It should be tried sublingually ie under tongue, half of lowest dose wich is 75mgs tablet and IF there are no immed/morning after fall out side-effects which are vast eg reports of patients feeling 'hit in BACK, SPACED_OUT etc -do NOT continue ever with this drug. 50% of all tried cases cannot take Lyrica) SAVELLA is not yet available in this country. We hope for 2012 should MCC pass this drug into SA.  It has fewer side effects and addresses pain mainlyin fibromyalgia. 

CFS + ME-CFIDS, especially in Europe, have been mistakenly judged, together with Fibromyalgia, as ONE DISEASE.

ME-CFIDS (Chronic Immune Deficiency Snydrome) ONLY, presents in patients as a single virus (eg Herpes Simples), or a combined set of viruses (eg EBV/CMV/COKSACKIE viruses). It has been thought FROM DEC 2009-MAY 2010 that a new RETRO VIRUS 'EXRV' was a causative but all research with regard to this virus has been refuted, without any scientific proof it ever WAS  a factor in CFS causatives. Many researchers say that they will continue in their search to PROVE this theory, but this is most unlikely to continue in studies with so little research finance from USA in 2010.  Similiarly Tic Bite Fever/Lyme's Disease may be this illnesses causatives, if dealing with alone. However, research shows that a major percentage of Fibromyalgia sufferers also have ME-CFIDS, and as a RESULT,  these viruses discourage correct Adrenal funtion, and the patient feels either ACUTELY or can lead to having CHRONIC FATIGUE as well. All are CHRONIC ILLNESSES. (Drs Jacob Teitelbaum, Robert Katz et al closed research sites). 2011 'EXRV' still remains an enigma in any causative of original/continuous viruses, but in the main, more originally diagnoses ONLY with ME/Cfids patients are now being diagnosed too with fibromyalgia due to that being the underlying, slowly evolving ORIGINAL CNS/ANS brain-systems, then immune systems' dysfunctioner.

'They are the same disorder, with different symptoms that are more pronounced': Some experts, such as Muhammad B. Yunus, MD, a pioneer FM researcher, believe that there is a large group of illnesses with overlapping features. Yunus calls these “Central Sensitivity Syndromes.” They include disorders such as FM, CFS, migraines, irritable bowel syndrome, TMJ, multiple chemical sensitivities, restless legs syndrome, and others. According to many researchers, between 50% and 70% of people with Fibromyalgia also have Chronic Fatigue Syndrome, and vice versa. Dr Yunus is part of the NEW, growing movement of HOLISTIC, INTEGRATIVE, FUNCTIONAL MEDICAL DRS AND OTHERS, who classify these chronic (meaning LONG TERM) illnesses under the term of 'funtional' as opposed to scientific, organic origin medicine. Dr Jacob Teitelbaum who was during Med School, found to be suffering with the then incorrectly diagnosed ONLY - CFS- is now an Holistic, Integrative Dr. in Hawaai, who opts for the FM+CFS+ME-CFIDS as the correct terminologies.

FM is characterized  by sometimes, (debilitating) pain, inability to sleep, stiffness and sore muscles particularly upon having had a restles night trying to sleep!CFS is characterized by extreme AND continuous exhaustion with the patient having 'low tone' muscular function, also  continuously.Most CFS ONLY SUFFERES have NO BODY PAIN, but have low motor skills, and do well with a Functional Medicine programme, rather than any anti-biotic regime as is so often tried.  EITHER/BOTH physical/+emotional injuries to body and soul are responsible for this 'siient disease' to promelgate, at any age or extreme stress and trauma to brain and body. One must know if FATIGUE is a problem as well, and whether this is CFS + ADRENAL FATIGUE  as well or fatigue from stress/distress (lately called 'reactive depression') FM!

 

Substance P and other chemicals in the brain that transmit pain signals in the body and  are elevated in people with FM, and the latest research shows 4 OPIOD RECEPTORS ONLY in the FM brain, thus PAIN RECEPTION from anagesics are ineffective. These are generally not exhibited in  those patients with Chronic Fatigue only. 
RNasel is not necessarily elevated in people who have FM. RNasel, which is an antiviral enzyme, is commonly elevated in people who have CFS · Fibromyalgia is often traced either to an injury, or both physical/emotional trauma. IN YOUNG CHILDREN WHEN INTERVIEWED, 'GROWING PAINS' IS OFTEN THE 1ST INDICATOR OF FM. Chronic Fatigue tends to start with a flu-like illness. See above note:  CF IS NOT ME-CFIDS. HOWEVER, HAVING SAID THAT, 50% OF FIBROMYALGICS ARE SHOWN TO HAVE EITHER PRESENT OR TO HAVE SUFFERED IN THE PAST FROM MANY OF THE VIRAL CONDITIONS ATTACHED TO ME-CFIDS. ADRENAL FATIGUE ATTACHES ITSELF TO FIBROMYALGIA, AS DO MANY OTHER ILLNESSES SUCH AS LUPUS, ANCHOLODING SPONDOLITIS, RAYNAUDS SYNDROME,INSULIN RESISTANCE, MS , RA ETAL. (Prof MajIb Ali, USA. He  also calls Fibromyalgia alone, THE MURDEROUS PAIN CONDITION)!

People with Fibromyalgia  still undergo the new criteria testings without the Tender Point Testings alone, as  TP Testing had in the past proved to be unreliable in the wrong 'hands'.However, SUB SETS of FM have been shown to have as FEW as 7 and as MANY as 24 Tender Points. This new criterea now agreed upon by  by the American College of Rheumatology in May 2010, is the only diagnostic acceptable testing for the patient to be diagnosed with FIBROMYALGIA. Those with only CFS will most likely not experience particular pain that is at all widespread, unless the FATIGUE and FM are working in tandem. The similarities Between Fibromyalgia and Chronic Fatigue Syndrome exist,  despite the differences mentioned above.  Muscle and/or joint pain and weakness is often a problem for people with  FM sufferers, and weakness and stiffness found in only CFS along with the fatigue . Headaches, memory loss, difficulty with concentration, forgetfulness, depression, numbness, non refreshing sleep, and generalized weakness are all present in many people with both disorders.  Because these two conditions share so many similarities, the diagnosis that is given is often dependent on the health care professional/consultant that is see who is not FAMILIAR WITH THE ACR's NEW CRITERIA, OR PERHAPS DOES NOT KNOW WHERE TENDER POINT AND WIDESPREAD TRIGGER MUSCLES ARE ACTIVE IN FM ONLY PATIENTS TO DIFFERENTIATE EITHER CONDITION. Some doctors are simply more familiar with the criteria for either one. A rheumatologist is more likely to give a diagnosis of Fibromyalgia, since that is their specialty. A specialist in infectious disease or endocrinologist will probably give a diagnosis of Chronic Fatigue Syndrome. Unfortunately this is why these two illnesses will never be conclusively separated.  To understand this can be a huge relief for people suffering from these conditions, thus, in this authors' experience, it is necessary to have correct evaluation of ANY of the Functional Medical Diseases/conditions/illnesses/diseases, in order to NOT received an incorrect diagnosis. It is worthwhile noting that many people are MISDIAGNOSED, throughout the world, many being told that ME-CFIDS is CFS, that CFS is Fibromyalgia etc.

PLEASE SEE 'SYMPTOMS'AND RECOGNISE THAT THESE ARE ONLY SOME OF THE 500-ODD SYMTOMS THAT ARE LISTED IN FIBROMYALGIA AND ARE FOUND IN  NO OTHER DISEASE/CHRONIC ILLNESS.   I hope this site and contact with sufferers will help in assisting with patient clarity of 'what is REALLY WRONG with the reader.

 WHAT IS ADRENAL FATIGUE:

AF is attached to excessive stress and trauma, whereby disallowing the 'fight/flight' hormone, adrenalin, to assist the very important stress controlling hormone CORTISOL, which is in the endocrine system of the brain. This dysfunction too disallows for correct dopamine, nor adrenalin and gaba to malfunction in the brain. Insulin hormone is affected, the biggest indicator that one's adral hormones are fatigued, is a sudden/escalating craving for either/both sugar and salt. Both have to be avoided, along with ensuring a clinical nutrition+ complete healthcare support to ensure that Stage 1, does not become Stages 2/3 AF.

Adrenal Fatigue is the 21st century top functional medicine illness and, being fibromyalgia, puts one's adrenal hormones at a far higher risk of falling into this catagory than if one was not suffering with any of the above illnesses. 

I hope the above information has assisted patients with MORE clarity on all 3 illnesses.

Please see my article on yet another FUNCTIONAL MEDICAL associated disorder called ADRENAL FATIGUE - a further risk factor for all the above conditions (fpund under NEWSLETTERS)

HOW IS THIS ILLNESS, ALONG WITH ALL FUNCTIONAL MEDICAL ILLNESSES, (ie CNS SYSTEM ILLNESSES), MANAGED HOLISTICALLY.

1. 2 hr. initial consultation is neeeded for the sake of the patient who needs to be understood and have all new Functional Medical questions dealt with, and then tender pointed if nec. to confirm the diagnosis of fibromyalgia. A history, including other disorders/illnesses/emotional traumas/stressors attached to the illness, and a general family history to validate who the 'carrier' or active/+ non active members of the patients' family. ) The consultant at the 1st appointment should demonstrate and explain what DIAPHRAGMATIC breathing is, in the promotion of RELAXATION which is imperative for every patient to learn immediately. Listening and interation between Intergratve consultant and patient is essential to establish a familial pattern and assist the patiennt with clinical nutrition, supplementation, exercise appropriate to the patients' capabilities, and use 'team help'.

2. A weekly/bi-weekly appointment to observe the improvement in patients, via the now 'carved in stone' ELIMINATION OF ALLERGENS, TOXINS that implode upon all organs and INSULIN WITH REACTIVE GLYCAEMIA (not DIABETES BUT INSULIN RESISTANCE) override  any existing diet - this forms the basis of determining 1 month later, with the hormone insulin, and pancreas, kidneys, spleen, liver etc., being TOXIN FREE. To assess how the patient's muscle-tone with specific exercise routine is progressing,  how various antiageing supplementations are working, and most especially needed - how  much committment the patient(s) has to her/his-self following this 'totally new way of lifestyle', eating, resting ,exercising, setting new boundaries etc.

3.  Counselling,Interaction via Neuro Linguisric Programming, life-style coaching, cognitive behacioural therapy, meditation and breathing, all address the NEUROLOGICAL EMOTIONAL  QUOTIENTS that assails all sufferers. To help improve the PHYSICAL EFFECTS OF FM, plus using the above -mentioned methodologies, along with myofascial pain release, Myofascial and Neuropathy Chiropractitioners, Cranio Sacral, Feldenkrais + Bowen technique therapies,  Clinical Nutrition,  specific exercise programmes, specialised supplemental, homeopathic, herbal adaptogenic regimes to suit each person, must be offered for sake of total wellness to all sufferers. All opportunity for change must be  taught   so that the patients needs are met by the Consultant and team, explaining and alleviating the CAUSATIVES OF FIBROMYALGIA, BOTH PHYSIOLOGICALLY AND EMOTIONALLY over a period of time.

4.  WHATEVER  the ability the patient has to assist these therapies to re- activate brain and body SYSTEMS. (for some fibromyalgics the process takes 3weeks, others take 3 months), progress is assessed  on regular visitations.

5. The teaching is paramount for the fibromalgia sufferer to understand that, with shared-responsibility REAL HELP, the patient is reponsible for his/her own wellness rather than being a victim to continuous ILLNESS  with determination to live a regular lifestyle in the knowledge that there is no cure, but definately, with much will and effort,  REMISSION is available to all from this dreadful illness. (remission from CFS is more difficult, Adrenal Fatigue MUST be dealt with asap esp with correct diet and 4 other specific treatment protocols).  ME can be kept at bay, with self-awareness to stay away from KNOWN colds and flu's, and increased IMMUNE SYSTEM functionality).

To all who choose this ROAD LESS TRAVELLED TO BECOME 'SURVIVORS IN REMISSION', the rewards of A LIFE OF WELLNESS  cannot outweigh any costs incurred along the way. None of the above illnesses need unnecessary medical costs any longer if the patient sees an holistic healthcare-giver, who must be well-schooled in the above-mentioned forms of rehabilitation and in Functional Medicine.

HOW MANY EXAMINATIONS, DOCTORS BILLS, UNNECESSARY RADIOLOGICAL TESTS, INCORRECT BLOOD TESTINGS HAVE BEEN INCURRED TO NO AVAIL ALREADY?

No blood tests nor radiological tests decide that one has fibromyalgia!

 

I am living proof , having 1st sought out all my options, taken the BEST AND THROWN AWAY THE REST, by putting them into practice as quickly as I was told that 'these were my options should I want MY NEW, BUT REAL LIFE BACK'. I took 3 years to recover whilst studying ( I continue studying still), I am  privilaged now to have 'been in the worst of places', and teach how to overcome all that assails a peson with fibromyalgia, ME-CFIDS, Adrenal Fatigue, Chronic Farigue, et al. I love being 'good' for ME, my family/friends/patients/co-workers again! This is my life- 'GIVING BACK TO ALL WHO WISH IT'.

MY HELPLINE JHB 011 485 5848 (PSE LEAVE A MSG) or CALL ME ON CELL 27(0)828768777

MY KZN LINE AND APPOINTMENT AND EMERGENCY LINE 082 876 8777

MY EMAIL ADDRESS IS fmssha@ibi.co.za

WOULD YOU LIKE TO CONSULT WITH ME VIA SKYPE? LET ME KNOW! ALL APPOINTMENTS COST R350 PER HR, NO MATTER WHAT MEDIA IS USED. 

A LAST LINE - FAMILY SUPPORT, IN 90 PERCENT OF RESEARCHED CASES WORLD WIDE IS NOT WHAT IT SHOULD BE - MAINLY DUE TO THE FACT THAT HOWEVER 'BAD/MAD/SAD/ILL' A FIBROMYALGIC FEELS, THE PATIENT APPEARS TO 'LOOK WELL ENOUGH'. Sufferers have been called  /MALINGERERS, LASITUDINOUS, PHYCHIATRIC, DEPRESSED' ETC., AND THUS 'LOOKING WELL' WITH THIS CONDITION HAS MADE LIFE FAR HARDER FOR THE ALREADY STRESSED +TRAUMATISED PERSON.

TAKE CHARGE OF YOUR OWN LIFE - 'WHEN YOU ARE SICK AND TIRED OF BEING SICK AND TIRED', YOU ARE READY TO CHANGE.

I WISH YOU THE COURAGE TO DO SO.

SHARON LEVIN

 (see PROFILE for qualifications)